Sheffield families reveal 'inhumane' torment as they are separated from loved ones with dementia

Age UK Sheffield has highlighted the painful separation of families with relatives who have dementia - with some believing the social isolation will hasten their death.

The charity says in a council report: “Many have described the enormous changes, losses and deteriorations, both mentally and physically, they have observed in their loved ones, even from a distance or virtually.

“Some have said they fear their loved ones will not live for much longer and not because of Covid-19.

“They have expressed that not being able to spend time together in final weeks and months of their loved ones' lives feels inhumane and something they will be haunted by.

“Despite many homes' stalwart and innovative use of technology as a means of communication, many say it is just not appropriate for their loved one.

“While many places are looking at alternative visiting procedures with gardens, windows and car parks, many have expressed that what people living with more advanced or complex dementia need is human touch, reassurance, love, facial expression and tactile connections. Obviously, with the above and social distancing, that just cannot be achieved.”

The charity adds many relatives feel anxious about finally visiting after more than 11 weeks.

It says: “”People fear their loved ones won’t recognise them anymore, or will have experienced such cognitive and physical decline that their relationship and quality of life might be jeopardised.

“Everyone has praised care home staff, but feel a lack of routine and familiar faces have contributed to unprecedented decline.”

Healthwatch Sheffield, the consumer watchdog for health and social care services, echos the concerns.

It says: “Building on previous concerns that personal protective equipment can be distressing for those who don’t fully understand the situation, we’ve heard that opaque PPE makes it more difficult to communicate with people who rely heavily on nonverbal communication and facial expressions in order to understand what’s being said.”

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