At 4ft 2ins, he’s size of a 10-year-old at just five
JACK Ives is Britain’s biggest five-year-old.
At over 4ft 2ins tall, he is already the height of a 10-year-old boy - and he can’t stop growing.
His mum Hayley is constantly having to replace his clothes and shoes because he grows out of them so quickly.
And it is possible when Jack is an adult he could be a towering 7ft 5ins tall.
Jack is one of only 64 people in the UK born with Beckwith-Wiedemann syndrome - an overgrowth disorder which means the youngster will just keep growing and growing.
That has meant brave Jack has spent much of his short life in and out of hospital. The syndrome also means he has an enlarged tongue which creates breathing and eating difficulties.
Jack, from Swinton, Rotherham, is believed to have the most extreme symptoms of anyone in the world and now his family are trying to raise £2,000 so he and his mother Hayley can fly to Denver in Colorado in July.
Once there he will attend a special-three day clinic where he will be examined by Dr Bruce Beckwith who identified the disorder. An appeal has been launched to try and raise the cash.
Jack was born six weeks prematurely - and even then weighed in at a massive 7lbs 3oz.
He spent most of the first 12 months of his life in the intensive care unit at Sheffield Children’s Hospital.
The youngster has already undergone 15 operations including three on his tongue to make it shorter and has also had a tracheotomy and a gastronomy to enable him to eat and breathe properly.
His parents, Hayley and business sales worker Darren, both 33, who have three other children - Abigail, six, Josh, two, and 16-month-old Gray - are hoping the trip to Colorado will benefit Jack and help Hayley, who is his full time carer.
“We realised something was wrong because of Jack’s weight when he was born and we were stunned when doctors told us he had a rare condition for which there is no cure,” said Hayley.
“We had never heard of the syndrome, no-one in our families suffers from it, and none of our other children have the condition. Jack spent the first 12 months of his life in hospital, mainly in intensive care.
“He had his first operation when he was eight months old because his tongue was creating breathing difficulties. Jack has been in and out of hospital most of his life but he is very brave and just gets on with things.
“There are only certain foods he will eat because of the problems with his mouth. He loves tomato soup, spaghetti bolognese and the soft parts of pizzas.
“He is already in an adult size two shoe and he quickly outgrows his clothes. He could grow to be anything from 6ft 5ins to 7ft 5ins tall.
“We have been told Jack’s is one of the most severe cases in the world and that is why I would like to take him to Colorado so he could be examined by Dr Beckwith who is an expert in this field.
“There will also be the parents of other children with the syndrome, and it would be nice for Jack and for me to mix and talk to these people although I am in contact with some parents in Australia and America.”
Darren added: “We don’t know what the future holds for Jack but we are determined to do everything we can for him.”