Mum’s bid to get her daughter walking

Lilia
Lilia
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A Sheffield teacher is trying to raise £15,000 to help fund life-changing treatment for her 20-month-old daughter.

Lilia Fynn was just five months old when she was diagnosed with quadraplegic cerebral palsy, a condition that means she may never stand, walk or even sit up unaided.

Her mum Amy, a teacher at Firth Park Academy in Shiregreen, is fundraising to pay for oxygen therapy and TheraSuit treatment in York, which costs about £7,000 for a three-week course.

Lilia would need as many as she could afford.

The treatment involves Lilia wearing a spacesuit for four hours a day, the same kind as worn by astronauts when they return to earth, in an effort to get her brain engaging with her limbs. They also want to buy her a specially designed trike.

Amy, aged 32, of Chesterfield, said: “Family and friends have been so generous. Her dad and I want to give her every opportunity to have every experience she can and this treatment could be the difference between our little girl standing on her own one day.”

Following a straightforward labour, Lilia was born in October 2013 without a heartbeat, at Jessop’s hospital. It took doctors nine-and-a-half minutes to resuscitate her.

Amy said: “Our beautiful baby came back from the dead, though she’d been deprived of oxygen. They let us see her for just a few seconds before she was taken to intensive care unit. I finally got to hold my baby for the first time when she was five days old.

“Lilia began to miss milestones from an early age. She did not put her hands to her mouth, roll over or sit up. However, she did smile, she smiles and laughs all the time.” To help visit Get Lilia Movin’ on Facebook.