A Sheffield doctor has been awarded a research grant to study the effectiveness of services for patients suffering from Juvenile Huntington’s Disease.
Dr Oliver Quarrell, from Sheffield Children’s NHS Foundation Trust, received the grant from the National Institute for Health Research.
He said: “We believe the information we gather has the potential to support future improvements.
“JHD is a rare form of the condition, which starts before the age of 20. There is no disease modifying treatment, so the current services focus on managing symptoms and supporting the patient.
“This study aims to find out the views of patients, carers and professionals.”