Funds raised for ‘water baby’, 7, with muscle wasting disease

Cole Spencer, of Rotherham, who has  Duchenne Muscular Dystrophy, (DMD), an incurable muscle wasting disease.
Cole Spencer, of Rotherham, who has Duchenne Muscular Dystrophy, (DMD), an incurable muscle wasting disease.
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A group of swimmers have raised almost £1,000 for a seven-year-old boy with a life-shortening incurable muscle wasting disease.

Cole Spencer was diagnosed with Duchenne Muscular Dystrophy in May 2014 when he was just five-years-old.

Family and friends took part in a two-hour swimathon at Rotherham Leisure Complex to raise cash for the youngster, who lives in Rotherham, and raised £977 – with more sponsor money still be collected.

Proud mum Kerry Brabbs said: “The event went very well and we gave a medal to all participants. It was a good afternoon, everyone had fun.

“The money raised will be used primarily to buy equipment for Cole’s needs in the future, as his condition deteriorates.

“Some of the money will also be used by us to create life experiences for Cole that he will be able to remember and cherish in the shortened lifetime that he has.”

Cole was diagnosed with the condition, which affects one in every 3,600 boys, after Kerry noticed he would often walk on his tiptoes and took longer to complete some tasks then his friends.

She said: “This means that Cole will eventually lose the ability to walk, feed himself, hug and eventually breathe. Children with this condition are usually reliant on a wheelchair at eight to 12 years old. The condition is life-limiting and at present there is no treatment or cure, it is 100 per cent fatal.”

Despite the struggles he faces, Kerry said Cole remains upbeat.

“He is determined, he’s very boisterous and wants to try everything.

“He has an amazing sense of humour and is a very happy, loving little boy.

“He has always been a water baby and spends most of his time under the water rather than on top of it.”

Donate at www.gofund me.com/swim-cycle. Visit www.cuddlesforcole.uk or search ‘Cuddles for Cole Campaign’ on Facebook.