Fire museum treat for brave Sheffield girl

Rare condition: Nicola Kilner with Penny Stephens, MacKenzie Stephens and her two-year-old little sister Jaymie-Leigh Stephens.
Rare condition: Nicola Kilner with Penny Stephens, MacKenzie Stephens and her two-year-old little sister Jaymie-Leigh Stephens.
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A POORLY girl who has had to endure countless hospital appointments will be going on an exciting day out with her pals thanks to a city charity’s festive campaign.

MacKenzie Stephens, aged four, from Hackenthorpe in Sheffield, suffers from rare chromosome disorder Turner Syndrome, which has left her deaf and in need of an injection of growth hormones every evening.

Doctors said MacKenzie would not survive long after birth - but the brave youngster has battled through her health problems, and is now getting a special treat from good cause Help A Child Have A Chance.

The charity has teamed up with The Star for the 12 Days of Christmas appeal, giving needy children across the region the chance of receiving a share of £10,000.

Nominations flooded in following an appeal, and now the winners are being revealed.

MacKenzie’s mum Penny Stephens said her daughter is ‘mad about fire engines’ - so the charity is arranging a special tea party at the Fire and Police Museum on West Bar, Sheffield, where she will hopefully get to meet Fireman Sam.

Penny said MacKenzie ‘never lets anything get to her’.

“She has lots of hospital appointments and is always getting poked and prodded. But she doesn’t even cry when she has her needle at night,” she said.

“I know she will love this, especially if she could meet Fireman Sam.”

Only around one in 2,500 girls are born with Turner Syndrome, and 98 per cent do not survive birth.

“She made it, even though we were told to say goodbye to her at a day old,” said Penny.

Shirley Kilner, who founded Help A Child Have A Chance in memory of her late husband, the Hallam FM DJ Dave Kilner, said: “MacKenzie is such a beautiful little girl and has to cope with a lot. We will make sure she has a lovely day.”

* See www.helpachildhaveachance.co.uk for details.

* See The Star tomorrow for another 12 Days of Christmas winner.