A charity is concerned about the shortage of specialist nurses for people in Yorkshire with rare muscle weakening conditions.
Myaware, which is the new name for the Myasthenia Gravis Association, has just carried out a survey among members which has revealed more than half of those surveyed have no access to a specialist nurse at all despite needing one. A third of people also struggle to contact their consultant. The charity is campaigning to change this.
Myasthenia Gravis is an autoimmune condition. Antibodies which normally fight infections go wrong and attack the communication system between the brain and the movement muscles. This makes sufferers feel weak.