A courageous little boy from Sheffield is not letting a severe muscle-wasting disease stop him from achieving great things.
Alec Syphas, aged six, from Hemsworth, suffers from Duchenne Muscular Dystrophy but is determined to take part in the 5k Big Fun Run next month at Rother Valley to raise awareness of the disease.
Alec was born prematurely in 2009 and seemed to be perfectly healthy until he reached the age of four and his mum and dad became concerned that his mobility skills weren’t developing the same as his friends.
Tests were carried out and Alec was diagnosed with the disease that affects one in 3,600 boys in the UK.
Early symptoms include enlarged muscles, low endurance levels and struggling to climb stairs, walk or run with confidence.
Mum Rachel said: “Alec will be starting the race without his wheelchair – I’ll be running with the wheelchair just in case he needs it to finish the race.
“Alec is a superhero every day in our eyes and this will be one of the greatest challenges he has faced.
“We want to give him a big superhero cheer along the way.
“He lives up to his superhero alter ego every single day; the boy with a huge battle ahead and the biggest smile to do it with.”
She added: “This is a big thing for Alec as he gets really tired walking 100 yards but wants to be part of a race and get a medal.
“We are trying to get as many people as possible to come along to the event to help make it a day to remember.”
A number of friends will be taking part in the August 14 event, starting at 11am, and wearing ‘Alec Avengers’ T-shirts to raise DMD awareness.